The 24th annual Stroll for Strong Kids Walk and 5K Run will be held at Genesee Valley Park on Saturday, May 30th where Golisano Children’s Hospital supporters will enjoy a family-friendly atmosphere full of activities.
Below is the letter I wrote during our time at Golisano Children's Hospital just two years ago. It highlights the reasons it's so important for us to participate in this year's Stroll for Strong Kids Walk.
Last year with the generous donations of so many of our friends and family, we raised over $1600! Please consider walking with us and/or donating to help us reach this year’s goal of raising $2000.
Dear Amazing Golisano Children’s Hospital Staff,
During our week or so stay in the PICU (no clue when we left and moved down to 7 South-days, nights, and hours blur together), I can not say enough about the level of care Jack received. I am also incredibly grateful for the care that was afforded to me and to my family. Accommodations were made for my mom and I to stay every night, to communicate with Jack’s grandpa (a family doctor) all of the medical details so that he could translate things to me over and over and make sense of things himself.
I am appreciative of so many things that the doctors and nurses and all staff we came into contact with took the time to do very naturally. I want you to know how amazing you are and how much of a difference your kindness and care has meant to me at the worst time in my life. Somehow during the most terrifying days of my life, you have provided me moments of calm, reassurance, and opportunities to talk about and normalize my fears. For this and so much more I am truly grateful.
Just a few things that stand out:
- hunting for and sometimes finding dino blankets,
- calling Jack sweet names like good sir or lovie and sweetly snuggling him,
- spending as much time as I needed listening to me and calming my fears,
- on an incredibly busy night, making it a priority for me to hold Jack for the first time in 4 days,
- giving me a notebook to organize my thoughts and write questions,
- providing a bucket full of hot packs to soothe Jack’s upset tummy,
- the nurses fighting over “dating” Jack and loving him so,
- staff checking on Jack and us even when he wasn’t your patient that day.
It does not go unnoticed that your job, while I hope it is a personally satisfying one, must be an extremely emotionally exhausting one. While Jack’s journey is one that is working toward a happy ending, we have witnessed many sad stories while here. It is incredible how each of you was able to put those situations aside the moment you walked into Jack’s room. There was never a doubt that you weren’t fully present and fully focused on Jack and our family. Each and every one of you has something special that you do that makes the toughest of days more manageable.
As a School Counselor and someone who is in the helping profession, I know the importance of and the struggle of taking the time for self-care. I hope you take the time to take care of and nurture yourself because the work you do is so very important. Each day you make a huge impact in the biggest and tiniest of ways. Thank you from the bottom of my heart.