Heart 2 Heart
Team Heart 2 Heart represents 3 famlies who each have received extended care from Golisano Children's Hospital. Brooks is ambitious 3 year old with vACteRL association and Cyclic Vomiting. He spend 10 days in the NICU at birth and continues to follow 6 specialties. Ryann and Reagan were born at 32 weeks. Ryann was baby "A", weighed 3 lbs and was 16 inches long. Reagan then of course was baby "B", weighing 2 lbs. and was 14 inches long. Ryann had a shorter stay in the NICU. She was there for 27 days where she had to gain and grow, not have any "episodes" setting off the monitors while eating and needed to keep her body temperature up. Reagan was very similar in having to gain and grow, keep her body temperature up, but she had trouble eating. She didn't have the suck/ swallow reflex down, and would tire easily while trying to do so, therefore needing a feeding tube. Reagan came home with the feeding tube in after staying in the NICU for 69 days. Kennedy is a very active 6 year old little girl, who is finishing up her first year of school. She was born with a congenital heart defect and Down syndrome. She required 2 major surgeries, including open heart surgery, in her first 6 months of life. She is followed by 8 different specialists at Golisano Children's Hospital.